Allergies:
Lessons learned
Lesley Simpson
The Hamilton Spectator

Morgan Hopkins, 5, a kindergarten student at
Seneca Central Public School, eats lunch with
Jessica Catherwood, left, whose mom packed her a
"Morgan-Friendly" lunch. Morgan has
three life-threatening food allergies. As a
result, special precautions have to be taken in
the school to ensure she is not exposed to any
of the dangerous food groups.
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The entire school has adapted to ensure
Morgan is happy and safe in her class.
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Morgan Hopkins
drags her knapsack to her table near the puppet theatre
and pulls out cucumbers. She dips them into her salad
dressing, dipping and eating, alone. She looks around
from her red dip to the floor, gazes at the ceiling, and
then to the class around her. All of the other children
are munching and chatting at tables for four at Seneca
public school, a country school south of Binbrook.
"Do you have a Morgan-friendly snack?" Gail
Poirier, the kindergarten teacher, asks classmate
Jessica Catherwood. Jessica zips open her lunch to
reveal purple grapes, juice, a turkey sandwich, carrots
and cookies.
"The
turkey is with butter,'' says Catherwood, 5, who knows
Morgan can't sit near mayonnaise. Products made with
peanuts, milk and eggs could kill Morgan. "Morgan
friendly" has become a frequent adjective in the
evolving vocabulary of this class.
Morgan has a
disinfected table for snacks and another reserved for
lunch, sugared gum drops wrapped with her mom's elastic
for treats, birthday cupcakes in the school's freezer, a
locked medical kit in the staff room, her photo posted
with information, an Epi-Pen that never leaves her waist
tucked into her belt, holster style, a policy and
procedure manual that will follow her throughout her
academic future, and Grade 1 teachers terrified of her
arrival.
Morgan's
tables may be a symbol of future classroom architecture
when it comes to accommodating children with food
allergies. Whether it's fish or dairy, eggs or nuts,
more and more children are being diagnosed with food
allergies. The issue of ingredient disclosure has
consequences for food manufacturers wary of litigation.
Fast food restaurants such as McDonald's will provide
ingredient lists. Reputable manufacturers such as
Kellogg's have consumer information lines.
There have
been enough accidental ingestions and deaths that
manufacturers have become responsible, said Jane Salter,
president of the Anaphylaxis Network of Canada, an
organization devoted to increasing awareness and
education for people who can die from an allergic
reaction to food. Sometimes companies even overuse
precautionary labelling, "May contain peanuts or
nut traces" because it's a voluntary designation.
When Nestlé recently announced it would stop making
nut-free chocolate treats such as Coffee Crisp, Kit Kat
and Smarties parents were sent scurrying for
alternatives.
Food allergies
have consequences beyond the obvious population of
sufferers forced to avoid restaurants, decipher
ingredients and never leave the house without their
needles. Parents in schools with peanut bans are
learning to become flexible about lunch. Health care
workers are showing teachers how to inject the Epi-Pen
into the thigh. Pictures of children with allergies
posted in staff rooms, such as the lineup of seven
photos at C. H. Bray in Ancaster, have simply become
part of the expected furniture.
"Three
times a year a newsletter goes out to parents
(September, December and March Break) describing
alternatives to peanuts,'' says Gary Moncour the
principal of C.H. Bray in Ancaster who helped create
policy for the school board. Every year the nurse gives
an overview. Attendance is mandatory. The school is
"peanut safe" as opposed to "peanut
free," a legal term that suggests the school has
warned parents, but occasionally a wayward peanut butter
sandwich finds its way inside. When that happens the
student who brought that food is removed.
"What we
do is not unusual,'' says Moncour. "It's become
routine."
Why food
allergies are increasing is not fully known. If you
think of the immune system functioning like an atlas,
the system includes a series of pathways, explained Dr.
Jason Ohayon, a consulting allergist and clinical
immunologist, and an assistant clinical professor at
McMaster University and Hamilton Health Sciences Corp.
"Let's
say you're driving from Hamilton to California. And
let's say California is an allergy mecca and Miami is
allergy free. There are many ways to get there, many
highways to choose from, but the routes are still under
scrutiny.''
For science,
that means the roadmap of the immune system pathways are
becoming clearer, and doctors try to manipulate that
system for patients. But doctors do not know why some
people end up in Miami and others wind up in California.
Because these
pathways are developing in infancy, doctors in Britain
have recommended pregnant women, avoid peanuts. In the
second trimester the baby is developing those pathways
to Miami or California. The thinking behind the ban in
Britain is to eliminate high-risk cargo. This ban is one
of the most contentious issues in the medical debate.
The Canadian Society of Allergy and Clinical Immunology
just recently recommended allergic parents avoid peanuts
during nursing. The recommendation applies whether it's
the father or mother who suffers from allergies, as
genetic history constitutes one of the risk factors.
"If you
went downtown in Hamilton and stopped people on the
street you would find that one out of five has some sort
of allergic disease," said Dr. Ohayon.
It's a case
for an epidemiological Sherlock Holmes filled with
combinations of clues from a variety of venues:
genetics, the way we live and diet. Consider airtight,
fuel-efficient homes where the windows are closed,
insulation dense, and dust mites find a lovely welcome
in bedding, carpeting and stuffed animals. It is the
mites' invisible excrement that constitutes the most
common indoor allergen.
Move to
innercity Chicago and New York, where families are
living below the poverty line and doctors are overloaded
with cockroach allergies, and they come to see
affordable housing as good medicine, he said.
The first
recorded description of allergies was unearthed on the
tomb of Pharaoh Menes dated 2641 BC, so this is not a
modern disease. What archeologists unearthed was a
picture of the political leader being killed by a wasp.
One school of
thought is that the immune system is not being activated
because of the sterility we are living with, and, like
the lonely Maytag repair man, it starts looking for
something to do.
Consider how
eating has changed in the last 100 years. "You used
to be able to see what you were eating. If potatoes
bothered you, you would avoid potatoes,'' suggests
Salter.
If you pick up
processed food there will be many ingredients you do not
recognize and you will be exposed to them. Tracy Hopkins
uses a bread machine because she knows that
"steroyl-2-lactylate," found in some bread,
contains dairy. Add global travel and produce and
allergies might be the price we are forced to pay,
Salter suggested.
While many
parents are hostile to allergic accommodations, others
become adept at creative accommodation. One mother
called the Binbrook bakery where Morgan's aunt works.
She ordered a new flavour : "Morgan friendly."
Morgan was able to go a classmate's party worry-free. On
the box of birthday cake the directions said,
"indulge." Sometimes food itself can be
eliminated and loot bags can be filled with stickers,
notebooks, markers or marbles.
For Morgan,
eating is regulated. She can't sit near a child who has
cheese, pizza, egg salad, milk, puddings, yogurt,
chocolate, store bought cookies, granola bars, buttered
popcorn or a thousand other staples of the lunch
repertoire. "Morgan friendly" doesn't mean
Morgan can eat the product. It means she can sit beside
a child without breaking out into what she calls "itchies,"
the beginning of an allergic reaction. This is a kid
whose hands swelled into what looked like toads at a
movie theatre when her mom covered her seat with her
coat, but left the armrests exposed. Her skin reacted to
the residue.
As an infant
she reacted to breast milk. Doctors raised their
eyebrows when Hopkins thought something was wrong. She
turned out to be right. Doctors know now that proteins
can be passed through the breast milk to the baby.
At 15 months
she was allergic to rice, soy and cow's milk and was
being given a calcium supplement. Her mother tried a
quarter teaspoon of goat's milk and Morgan's cheeks
swelled, her throat constricted and she began to gag.
Because of the
25-minute response time for the ambulance, Hopkins and
her sister rushed her into their car to the Henderson
hospital and injected an Epi-pen which reversed the
symptoms.
"It was
the scariest moment of my life,'' said Tracy Hopkins.
Back in the
classroom, Jessica joins Morgan at the table. Jessica
pops grapes into her mouth. Morgan dips her cucumbers.
They munch. They don't talk. Kids in this class know the
rule is "no sharing food" with Morgan.
"We
explained that it sounds cruel, but it's designed to
keep Morgan safe,'' says Poirier.
It's 10:30
a.m. and it's snacktime at Seneca public school. It's a
school in Haldimand Norfolk, where kids are bused.
Morgan gets a ride.
"I don't
have the guts to put her on the bus,'' says Tracy
Hopkins. What is usually a relaxed mid-morning pause has
become a structured ritual of washing, eating and
washing again. Hopkins provides the class with wipes.
Beside the sink there are containers of disinfecting
soap for the kids, a special brand for Morgan and a
spray bottle for the teacher for furniture.
"In the
fall the school was in a panic,'' says Poirier, who is
in charge of the class of 17. "There were days in
the fall when I went home and said to my husband, 'I
don't know if I can make it." There were days when
... I felt like a nutcase. I was disinfecting chairs,
disinfecting tables ... . The kids are being cleaned to
death."
Every day
janitors wet-mop and vacuum Morgan's class. A caretaker
comes in daily at 12:30 p.m. to scrub tables. The spray
bottle she uses in the morning and afternoon has now
become an appendage for Poirier. At recess the kids play
within a particular area so Morgan can be located.
Morgan and her mother have made presentations to the
school.
"We've
had the health nurse in (for training) we've had the
ambulance attendant in ... but I don't want to be
responsible for a child dying,'' says Poirier.
What does a
parent do when peanut butter smudges can move like
invisible terrorists from volleyballs to skipping ropes,
from water fountains to glue glitter? Hermetically
sealing a five-year-old in a peanut-free, milk-free,
egg-free room was not an option. But this is Morgan's
first year at school, a rite of passage, an act of faith
and a million daily moments of vigilance.
With her
'radar' turned on, Hopkins saw food lurking: the
discarded candy wrappers on the playground, ingredients
in the homemade finger paints, birthday cupcakes at
school, relay races in the gym, dirty hands on the bus.
Add to that the unknown terrain of field trips, food
used in art projects, the potential for an innocent
error by a supply teacher or a gift of food from a
friend.
Hopkins sent
out an invitation to the girls' parents in her
daughter's class inviting them to eat lunch with Morgan
at her special "allergen-free" table, and
listing the foods the child could bring. It was a
gesture designed to decrease the social isolation for a
kid who, by necessity, has to be occasionally isolated.
"My
daughter is the little gal in your child's class who has
life threatening food allergies to peanuts, milk, and
eggs." But instead of creating terror, she offered
encouragement.
"So far
everything is going just great. Thanks to Mrs. Poirier
and the janitors, we are able to keep the classroom and
the children clean. Your children have been so
wonderful! All have been willing to clean their hands
after eating, and so thoughtful to Morgan on special
events like Valentine's Day and Christmas by bringing
treats that she is able to eat. ..."
For the
Hopkins family, Morgan's allergies mean resourceful
substitution. Family vacations mean a cottage with a
kitchen where they can control the food. Morgan carries
a water bottle in her knapsack because she can't drink
from the fountain. And her mom doesn't leave the house
without their blue cooler that has been transformed into
a mobile restaurant.
"We're
making our own traditions,'' says Hopkins. "We do
more picnicking."
After snack
time, kids are given an opportunity for free play.
Morgan plays
on her own, choosing a game of matching numbers. She
concentrates, matches up the numbers until the board is
full, and announces to her teacher she has completed the
task. Maybe it's reassuring when you're five years old
to be able to create order for yourself in a world where
the act of eating has the capacity to kill.
For more
information check out www.foodallergy.org.
You can
contact Leslie Simpson by e-mail at lsimpson@hamiltonspectator.com
or by telephone at 905-526-3207.
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